NEW! NOW FORMING: MYELODYSPLASTIC SYNDROMES
PHILADELPHIA PATIENT & FAMILY SUPPORT GROUP
IF YOU LIVE IN THE PHILADELPHIA METROPOLITAN AREA AND ARE INTERESTED IN JOINING A SUPPORT GROUP FOR PATIENTS WHO HAVE MDS, CALL 1-800-MDS-0839 OR EMAIL AHASSAN@MDS-FOUNDATION.ORG. Click here to learn more!
The MDS Foundation has developed a strategy for setting up patient groups and assistance is now available to organize support groups for MDS patients. Any member of the Foundation, patients, friends, family members, and caregivers are invited to join with us to move this project forward. Would you be interested in joining a few other people to help start a needed support group for MDS in your area?
- Existing Support Groups
- United States
- Chicago, Illinois MDS Support Group meets on the fourth Tuesday of the month from 1:30-3:00 pm at Northwest Community Hospital’s Cancer Service department (lower level), 800 W. Central Road, Arlington Heights, Illinois. Contact Kim Jensen at kjensen@nch.org or call 847.618.6914.
- North Carolina MDS Support Group: Contact Jonathan Ervin at MDS.cure.NC@gmail.com.
- Puget Sound, Washington MDS Support Group meets at the Seattle Cancer Care Alliance Center. Contact Steve Kessler at smartmony@msn.com or call 800.877.0168.
- San Francisco Bay Area MDS Support Group meets on the second Sunday of the month at 2 pm at the Park Boulevard Presbyterian Church, 4101 Park Blvd., Oakland, California. Contact 800.MDS-0839 for more information.
- Stanford Cancer Center MDS Patient & Family Support Group meets the third Monday of the month from 6:30-8:00 pm at the Stanford Cancer Center, 875 Blake Wilbur Drive, Palo Alto, California, 2nd Floor Conference Room CC2105. Contact Group Leader, Lenn Fechter, RN, BSN at 650.725.0744.
- International
- Brazil: ABRALE — http://www.abrale.org.br/
- Canada: Hamilton, Ontario MDS Support Group. Contact William Pearson at william.pearson@sympatico.ca or call 905.561.6999
- Canada: Toronto, Ontario MDS Support Group. Monthly meetings starting on September 10th, 2011. Contact Stan Chmelyk by phone at 905.457.9858 or by email at stan_c@primus.ca.
- Czech Republic: Sdruzeni MDS — http://www.diagnoza-mds.cz/
- Denmark: http://www.mds-and-you.info/; LYLE – http://www.cancer.dk/lyle/
- France: Association Connaître et Combattre les Myélodysplasies — http://asso.orpha.net/CCM/
- Germany: Leukaemie Hilfe Rhein-Main — http://www.leukaemiehilfe-rhein-main.de/
- Italy: AIL (Associazione Italiana contro le leucemie) — http://www.ail.it/
- Japan: MDS Renrakukai — http://www.geocities.jp/mdsrenraku/
- Netherlands — http://www.kankerpatient.nl/leukemie; – http://www.leukemie.nfk.nl/
- Romania:
- Spain: AEAL (Asociación Linfoma Mieloma y Leucemia) – http://www.aeal.es/
- Sweden: Blodcancer Forbundet – http://www.blodcancerforbundet.se/
- United Kingdom: UK MDS Patient Support Group – http://www.mdspatientsupport.org.uk/
NEW – Click here to access translated versions of our patient handbooks!
