I know there are a number of people taking exjade here and I just thought I’d mention that mom started having a reaction last night after taking it for two weeks. She has a rash all over her body right now. It’s not hives but is obviously, not petichaie either. She’s only on 250mg so I’m surprised at the reaction. It makes me VERY thankful we didn’t start at the full dose!! Does anyone know if exjade builds up to a certain level in the body or if it’s metabolizes out of the system every 24hrs?
The reading I’ve done says they can restart exjade after the rash is gone but at a lower dose and with a steroid. Well, not sure she can go a lower dose then 250 and I’m pretty sure we don’t want steroids so we might be in a pickle here. We see the doctor tomorrow. For now she’s stopping the exjade until we see the doc.
Just wanted to throw this out there for others who are on exjade and ask if you’ve had the rash.
Patti