MDS is a bone marrow failure disorder
MDS is a blood cancer
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Two questions – about low risk MDS
This is my first posting. Hello to those who read this. My 1st question is ...
3 hours, 37 minutes ago
Biopsy Results – some confusion?
My husband had his BMB this morning. We will get results in 16 days March 8th. ...
6 hours, 58 minutes ago
18 Cycles on vidaza so far
I have now completed 18 Cycles on by Vidaza. I expect to be on the regular ...
10 hours, 54 minutes ago


Would you like your treatment center to become part of the referral system for MDS patients and be designated as a Center of Excellence? To be recognized as a Center of Excellence, an institution must have:
  • An established university (or equivalent) program
  • Recognized morphologic expertise in MDS
  • Available cytogenetics and/or molecular genetics
  • Ongoing research, including Institutional Review Board-approved clinical trials
  • Documentation of peer-reviewed publications in the field
Clinical trials study new interventions (drugs or procedures) to evaluate their safety and effectiveness in humans. Trials follow a careful set of steps, allowing for the systematic gathering of information to answer questions and confirm hypotheses that were formed earlier, in either laboratory experiments or preliminary trials. If you are an MDS patient, you may wish to discuss a trial with your primary treating physician to see if you qualify as a candidate. LEARN MORE
INSPIRE: Pivotal Trial for Patients with HR-MDS Now Recruiting Patients
INternational Study of Phase III Intravenous RigosErtib STUDY DESCRIPTION A Phase III, international, randomized, controlled study of Rigosertib + LEARN MORE
Sage Bionetworks and Celgene Corporation announce the launch of Journey PRO, a mobile health research study to improve the lives of Chronic Anemia Patients
For Release: Monday, August 14, 2017 Sage Bionetworks and Celgene Corporation announce the launch of Journey PRO, a mobile health research stud LEARN MORE
Upcoming Events
  1. Tandem BMT Meeting

    February 21 - February 25
  2. New Jersey MDS Support Group Meeting

    February 21 @ 7:00 pm - 8:30 pm
  3. American Psychosocial Oncology Society (APOS) 15th Annual Conference

    February 22 - February 24
  4. Rare Disease Day

    February 28
  5. Eurordis – Rare Diseases Europe

    February 28
Coupon Codes
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Review answers to commonly asked questions or get answers to your questions from an MDS expert