MDS is a bone marrow failure disorder
MDS is a blood cancer
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Hemoglobin dropped
Hospital called me. My hemoglobin went from 7.5 to 6.6 in 2 weeks. Get my first ...
5 hours, 1 minute ago
Just got diagnosis a few days ago
I had a bone marrow biopsy a couple of months ago but the hematologist didn't ...
5 hours, 55 minutes ago
MDS and Covid-19. Getting Vidaza Injections
I completed my 39th Vidaza Cycle yesterday in the midst of the Covid 19 Virus ...
1 day ago


Would you like your treatment center to become part of the referral system for MDS patients and be designated as a Center of Excellence? To be recognized as a Center of Excellence, an institution must have:
  • An established university (or equivalent) program
  • Recognized morphologic expertise in MDS
  • Available cytogenetics and/or molecular genetics
  • Ongoing research, including Institutional Review Board-approved clinical trials
  • Documentation of peer-reviewed publications in the field
Clinical trials study new interventions (drugs or procedures) to evaluate their safety and effectiveness in humans. Trials follow a careful set of steps, allowing for the systematic gathering of information to answer questions and confirm hypotheses that were formed earlier, in either laboratory experiments or preliminary trials. If you are an MDS patient, you may wish to discuss a trial with your primary treating physician to see if you qualify as a candidate. LEARN MORE
Astex Pharmaceuticals announces U.S. Food and Drug Administration (FDA) acceptance for review of an NDA for the combination oral hypomethylating agent cedazuridine and decitabine (ASTX727 or oral C-DEC), for the treatment of MDS and CMML
New England Journal of Medicine Publishes Results of Pivotal Phase 3 Reblozyl® (luspatercept-aamt) MEDALIST Trial
Data from MEDALIST showed significant clinical benefit of Reblozyl in treating anemia in adults with myelodysplastic syndromes. Read More LEARN MORE
Upcoming Events
  1. Virginia MDS Support Group Meeting

    April 11 @ 10:30 am - 12:00 pm
  2. Northern California MDS Support Group Meeting

    April 14 @ 6:00 pm - 7:30 pm
  3. Patient Support Meeting – London, ON

    April 18
  4. AML World Awareness Day

    April 21
  5. Chicago MDS Support Group

    April 21 @ 1:30 pm - 3:00 pm
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It’s free to help Myelodysplastic Syndromes Foundation when you sign up for Giving Assistant and shop at Bed Bath & Beyond, Aliexpress, and ULTA! Sign up today and get donating!

Review answers to commonly asked questions or get answers to your questions from an MDS expert