MDS is a bone marrow failure disorder
MDS is a blood cancer
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Take a 2019 AAMDSIF Patient Survey
2019 Aplastic Anemia & MDS International Foundation patient survey. Our ...
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Check out: rarepatientvoice.com
This is a website that takes surveys and offers information for rare ...
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MDS and Hospice
My dad is 74 years old and was diagnosed with MDS about one year ago. ...
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CENTERS OF EXCELLENCE
Would you like your treatment center to become part of the referral system for MDS patients and be designated as a Center of Excellence? To be recognized as a Center of Excellence, an institution must have:
  • An established university (or equivalent) program
  • Recognized morphologic expertise in MDS
  • Available cytogenetics and/or molecular genetics
  • Ongoing research, including Institutional Review Board-approved clinical trials
  • Documentation of peer-reviewed publications in the field
LEARN MORE
CLINICAL TRIALS
Clinical trials study new interventions (drugs or procedures) to evaluate their safety and effectiveness in humans. Trials follow a careful set of steps, allowing for the systematic gathering of information to answer questions and confirm hypotheses that were formed earlier, in either laboratory experiments or preliminary trials. If you are an MDS patient, you may wish to discuss a trial with your primary treating physician to see if you qualify as a candidate. LEARN MORE
 
RECENT NEWS
INSPIRE: Pivotal Trial for Patients with HR-MDS Now Recruiting Patients
INternational Study of Phase III Intravenous RigosErtib STUDY DESCRIPTION A Phase III, international, randomized, controlled study of Rigosertib + LEARN MORE
CELGENE AND ACCELERON ANNOUNCE LUSPATERCEPT ACHIEVED PRIMARY AND KEY SECONDARY ENDPOINTS IN PHASE III ‘MEDALIST’ STUDY IN PATIENTS WITH LOW-TO-INTERMEDIATE RISK MYELODYSPLASTIC SYNDROMES
Results showed significant improvement in red blood cell transfusion independence compared to placebo Safety profile generally consistent with LEARN MORE
Upcoming Events
  1. Mayo Clinic Clinical and Multidisciplinary Hematology and Oncology Annual Review

    February 15 - February 17
  2. Scripps’ 39th Annual Congress (HemOnc2019)

    February 16 - February 19
  3. Chicago MDS Support Group

    February 19 @ 1:30 pm - 3:00 pm
  4. Tandem BMT Meeting

    February 20 - February 24
  5. New Jersey MDS Support Group Meeting

    February 20 @ 7:00 pm - 8:30 pm
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Review answers to commonly asked questions or get answers to your questions from an MDS expert