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MDS Patients & Caregivers Your Help is Needed!

This topic has 1 reply, 2 voices, and was last updated 11 months, 2 weeks ago by Shaunna Robey.

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April 24, 2023 at 3:44 pm #61822

Anonymous
Inactive

Pillar Patient Advocates is seeking 40 adults living with MDS, or their loved ones, to participate in a 90-minute virtual group interview. In appreciation, participants are paid $175 for their time and input. If interested, please register on this link:

https://www.research.net/r/mdsfdnppa or email Erin at EPilkington@PillarAdvocates.com. Be sure to include your phone number, time zone and a range of time that is good for you to have a 10-minute screening call. This is for US only.

May 15, 2023 at 10:09 am #61845

Shaunna Robey
Participant

I’m not sure if we fit what you are looking for. My special needs adult daughter, current age 45, has MDS-RS, diagnosed 3 years ago. She has other co morbidities as well. I would like to participate if she fits in your search. No need for the stipend. We live in Virginia, USA
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