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Global Support, Local Connections

Patient Support Groups

Support groups can provide you with practical and emotional support you may need during this time. The MDS Foundation has compiled a list of US and international MDS-specific support groups, as well as support groups that target multiple blood disorders.

Some support groups are independently operated with oversight from MDSF.

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The MDSF has successfully coordinated the development of several patient support groups worldwide that are MDS-specific. The MDSF offers administrative and financial assistance to help those that would like to start an MDS support group in their region.

All MDSF partners are invited to join us in moving these efforts forward! If you are interested in joining others to help develop a much needed MDS support group in your region…

Contact us today

Support Groups

Arizona MDS Virtual Support Group

Arizona MDS Virtual Support Group meets on the second Thursday of every month 3:00 – 4:30 pm AZ Time. For dial-in information and for any questions, contact Adolfo Yniguez

Greater Washington, DC Area MDS Virtual Support Group

Greater Washington, DC Area MDS Virtual Support Group meets on the second Saturday of every month 10:30 am – 12 pm ET. For dial-in information and to register, call Brian Anderson

Minnesota MDS Patient Support Group

Minnesota MDS Patient Support Group meets at Burnhaven Library Main Meeting Room, 1101 County Road 42 W, Burnsville, MN 55306 (corner of Burnhaven and Co. 42). Meetings are held on an intermittent basis. Please contact the Group Leader, Lori Nelson, for details on upcoming meetings.

Philadelphia, Pennsylvania MDS Family

Virtual MDS Family: Coping and Caring Support Group.  Contact Rochelle Ostroff-Weinberg

The Chicago MDS Virtual Support Group

The Chicago MDS Virtual Support Group meets on the third Tuesday of every month from 1:30-3:00 pm CT. For dial-in information and for any questions contact Kim Jensen

The Northern California MDS Virtual Support Group

The Northern California MDS Virtual Support Group meets on the second Thursday of every month 6:30-8:00 pm PT. For dial-in information and for any questions contact Jill Whitney

The Southern California MDS Virtual Support Group

The Southern California MDS Virtual Support Group meets on the third Saturday of every month 10:00-11:30 am PT.  For dial-in information and for any questions contact Joan Powell

Empower Your Community

The MDSF offers administrative and financial assistance to help those that would like to start an MDS support group in their region. You can make a meaningful impact on those affected by MDS so take the first step in building a supportive community.

Start Your Support Group

The MDS Foundation proudly partners with the following organizations

MDS AllianceKnow AMLALANThe NHLBI Blood Health Network

Get in touch

Email

patientliaison@mds-foundation.org
hcp@mds-foundation.org

Phone within the US

1-(800)-637-0839

Outside the US only

1-(609)-298-1035

Address

The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620

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A global non-profit advocacy organization, supporting patients, families and healthcare providers in the fields of MDS and its related diseases for over 30 years

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