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I was initially diagnosed with MDS in 2014 after a bone marrow biopsy, although prior blood tests indicate that the start predated this date. Two follow-up BMBs confirmed the diagnosis. My classification was/is IPSS-R low-risk. My red blood cells have never been outside the normal range, although my platelets and white blood cells are pretty low. I've never had any noticeable symptoms. My doctor put me in a watch and wait protocol with regular visits. In Februray of 2022 my platelets and wbcs decended to a level where he recommened treatment with INQOVI (decitabine and cedazuridine). Initially I got a boost in platelets but over time they ranged between 30-60K although recently I have had some lower readings. My white blood cells have ranged in the 2.0-4.0 range. Over the entire course of dealing with this I have never had any symptoms. Despite the low platelet count I don't have any bleeding or bruising. I do think I'm more prone to cold-like infections but these are cured with antibiotics. I have never had a bad reaction to the INQOVI. Lately my levels have declined (I've had some platelet readings below 20 and wbcs below 2.0) so I'm not sure how this will be addressed in the future. I see my doctor soon when we'll discuss this. At this writing (9/10/2025) I am 75 years old and have been living with this for about 13 years. Other than monthly blood tests and bi-monthly visits with my doctor MDS has had little measurable impact on my life. I'm able to stay active and have had no other issues related to the condition. After reading the many serious issues and treatments undergone by others I consider myself lucky at this point although like everyone else I don't know what the future holds regarding any progression in the condition.