Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Patient Advocate
My journey into fundraising for cancer organizations began when my grandfather was diagnosed with cancer. At the time, I was working in publicity and public relations, but I felt a strong pull to use those skills for something that could make a real difference. Shifting into nonprofit development felt like the right fit—a way to turn my professional expertise into meaningful impact.
That decision shaped the course of my career. I have now dedicated over a decade to supporting patients and families affected by blood cancers. Everyday, I witness firsthand the profound difference that timely information, resources, and compassionate support can make for patients navigating an often frightening diagnosis. I love the work and the impact we are able to make.
MDS is an often misdiagnosed and underrecognized disease. Too many patients and families face delays in diagnosis or struggle to find clear, reliable information about their treatment options. What first drew me to this role was the chance to change that narrative—to help ensure that every patient, caregiver, and family has access to the resources, knowledge, and support they need to make informed decisions about care and treatment.
The most rewarding part of my work is seeing patients feel empowered—when someone tells us that a program, conversation, or resource helped them better understand their disease or advocate for themselves with their care team. Those moments remind me that the work we do goes far beyond raising awareness; it’s about restoring a sense of agency and hope. At the same time, the biggest challenge is knowing how many gaps remain: MDS still lacks the broad recognition it deserves, and too many patients fall through the cracks before they ever reach the right specialists.
I also take pride in the support we provide to healthcare professionals. Through our international network of Centers of Excellence, we connect patients with leading MDS-specific healthcare teams, advance professional education, and ensure physicians have the resources and tools they need to deliver the highest standard of care. Supporting both patients and providers strengthens the entire care journey and drives better outcomes across the MDS community.
As Director of Development, I know that none of this work is possible without the generosity of donors. Every gift—large or small—directly supports the patient resources, healthcare professional education, advocacy, and research efforts that change lives. Philanthropy is what fuels our mission and ensures that patients and families facing MDS are never left without answers, guidance, or hope.
For me, working at the MDS Foundation is more than a career—it’s a calling. Each day, I am driven by the knowledge that we can help patients, caregivers, and healthcare professionals feel more supported, more informed, and more connected in the fight against MDS. That is the impact I strive for, and why this work remains so meaningful to me
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was initially diagnosed with MDS in 2014 after a bone marrow biopsy, although prior blood tests indicate that the start predated this date. Two follow-up BMBs confirmed the diagnosis. My classificat…
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and pla…
Patient
Diagnosed in 8/25.
Just wondering about other people's journey through the process.