The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I am a 77 year old male ( almost 78) and was diagnosed with MDS with rings and a 5q variant. I had received a transfusion for a colon operation last August. The operation went well, and I recovered but was then told to see a Hemotologist/Oncologist, and was diagnosed with MDS. I tried all treatments including 5-6 weeks of Vidaza. Nothing has worked and I am currently transfusion dependent. I was recently reading about Ojjaara, and was wondering? Or any other suggestions would be appreciated. I am wary of a Stem Cell Transplant at my age. Any thoughts about Ojjaara or anything else?
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient Advocate
From a young age, my parents instilled in me the importance of easing the burdens of others and leaving the world better than I found it. That early lesson shaped who I am and why I have always been d…
Patient
Hi, my name is Christina, and my journey with MDS began in 2021. With no previous medical history, my diagnosis came as a complete shock. My family and I quickly searched for a care team so I could be…
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and pla…
