The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I am a 77 year old male ( almost 78) and was diagnosed with MDS with rings and a 5q variant. I had received a transfusion for a colon operation last August. The operation went well, and I recovered but was then told to see a Hemotologist/Oncologist, and was diagnosed with MDS. I tried all treatments including 5-6 weeks of Vidaza. Nothing has worked and I am currently transfusion dependent. I was recently reading about Ojjaara, and was wondering? Or any other suggestions would be appreciated. I am wary of a Stem Cell Transplant at my age. Any thoughts about Ojjaara or anything else?
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
For many years, I’ve struggled with fatigue, but I always chalked it up to being a busy mom with young children. It wasn’t until later that I realized this exhaustion was part of something much bigger…
Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Patient
In late 2020, my primary care doctor noticed that my platelet counts were a little under normal. At a following check-up, they decreased again. He sent be to a hematologist-oncologist who sent me for …
