The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startied droppong and has been since around September of 2024...
im now on Luspatercept and have been having to have blood transfusions, never had with Revlimid...only my third infusion of Luspatercept so im praying it will kick in and help me become the happy, energetic 75 year old possible...prior I was full of energy and felt balanced. Now, ive had horrible bouts of low BPressure, then spikes of high before normalizing...very frightening and exhausting.
more info available as needed. thank you and GOD bless us all!
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was diagnosed with MDS ring sideroblasts in 2018. I was on Procrit for two
years and then Luspatercept for two years. my hemoglobin dropped to 7.8
and had my first transfusion on August 1, 2025. I wi…
Patient
Hi, my name is Christina, and my journey with MDS began in 2021. With no previous medical history, my diagnosis came as a complete shock. My family and I quickly searched for a care team so I could be…
Caregiver
my son his 9 and recently diagnosed mds . so far this is just the beginning
