The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and platelets). After extensive tests and a bone marrow biopsy I was diagnosed with high risk MDS with a life expectancy of 6 -1 5 months without a stem cell transplant. In Dec 2024 I had a MUD (matched unrelated donor) stem cell transplant. Since then my cell counts have almost returned to normal (Hb is a bit low 12,5) and I was able to return to work in July 2024
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
James Williams
MDS Survivor, MDS Foundation Board of Directors, Development Advisory Board & Finance Committee Member
My journey with myelodysplastic syndromes (MDS) began in early 2017 with unexplained…
Patient
In 2021 my internist, who I have been seeing for 15 years, suggested that I see a hematologist because he was concerned about my low RBCs. He referred me to Dr Raphael at NYU Perlmutter. At the time I…
Patient
Hi, my name is Christina, and my journey with MDS began in 2021. With no previous medical history, my diagnosis came as a complete shock. My family and I quickly searched for a care team so I could be…
