Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I have been diagnosed with MDS and am currently low-moderate risk.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Caregiver
My 83 year old father has been failing since May 2025. He has always had low anemia however in the past few weeks he was diagnosed with MDS. He is losing so much weight and is very fragile. He is get…

Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…

Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…