Share Your MDS Story

In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s Lymphoma as a teenager, this was my greatest fear coming back to life. I returned home unsure if I wanted to go through the ordeal of chemo and a transplant, hoping instead that medication might let me hold on long enough to see my daughter graduate. But after speaking with my doctors, I realized the situation was far more serious, without a transplant, I had a matter of months or just a couple of years.

I began oral chemotherapy and moved through conditioning therapy toward my bone marrow transplant. It was an incredibly tough road, but deeply meaningful. Now, eight or nine months post-transplant, I feel as strong, if not stronger than before. I’ve continued running my business through it all and now serve as a patient advocate at MGH. As a two-time cancer survivor, I’ve gained a renewed outlook on life, and I’m grateful to share my story with others.