The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Patient
I was diagnosed with MDS in November 2022. My immature white blood cell count was very high, 15.6% - (at 20% it is Leukemia; normal is less than 1%). My doctors brought that down with chemotherapy and put me into the NMDP database in search of a stem cell donor and coordinated my treatment with the Fred Hutchinson Cancer Center in Seattle. NMDP found me an exact matching donor -- in Poland!
With chemotherapy, my doctors got my immature white blood cells under 5%, which qualified me for the stem cell transplant, which I received in October 2023 at the Fred Hutchinson Cancer Center. My donor's stem cells arrived at Fred Hutchinson the day after they were harvested!
I was in Seattle for treatment for five months and in the University of Washington hospital there for 26 long days. They sent me home in February of 2024 -- in remission, which is where I have been since. It is good to be alive!
Thank God for to amazing medical care I have received, the NMDP, and the MDS Exchange. Thank You!
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startie…
Patient Advocate
My journey with the MDS Foundation began 17 years ago, during a time of uncertainty in my life. I had been working for a major car credit company for 18 years, and when they decided to relocate, all e…
Patient
My experience with MDS started in January, 2023. I had gone for bloodwork, ordered by my rheumatologist. She called me late that night because she was worried about my #'s. I was booked to see a Hemat…
