The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Professional
I am a nurse practitioner and researcher. For 32 years, I have worked as an oncology nurse practitioner, focused on the care of patients with cancers involving the bone marrow. As a student nurse, I took care of a young patient with acute myeloid leukemia. I was struck by his kindness and willingness to share his experience with a nursing student. I was drawn to the field by this encounter and have never looked back. I cherish those personal encounters with patients and their families- helping navigate the complex terms and uncertain, uncharted territories for most of them. After becoming a nurse practitioner, I entered the stem cell transplant world and have continued working with myelodysplastic syndromes, acute myelogenous leukemia, aplastic anemia, and other hematologic malignancies. I love research and have been involved in many studies that were a "home run" and led to the approval of medications that are commonly used today. My research is now focused on helping patients and their families make treatment decisions and understand the symptoms they can anticipate as they venture into new treatments.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was diagnosed with MDS in November 2022. My immature white blood cell count was very high, 15.6% - (at 20% it is Leukemia; normal is less than 1%). My doctors brought that down with chemotherapy a…
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…
