Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege of guiding patients and families through the complex and emotionally challenging process of MDS diagnosis, prognosis, and treatment. I am there to celebrate the victories and mourn the losses, and it is an honor to be entrusted with such a responsibility. At the same time, I am also a researcher who develops and implements clinical trials with the goal of improving treatments and reducing the burdens of MDS. The MDS Foundation is such an important resource for patients, caregivers, and providers as it brings us together as a community with the united goal of improving the lives of those affected by MDS.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient Advocate
There are moments in life that, quite literally, change you. They take your breath away, cause you to take a hard look at your life, how you are living, and force you to make a choice- to allow the t…
Patient
I was diagnosed with myelodysplastic syndrome in 2010. I had peripheral blood cytopenias (pancytopenia). The first few years I felt good in spite of the fact that I had obvious health problems: bruise…
Patient
For many years, I’ve struggled with fatigue, but I always chalked it up to being a busy mom with young children. It wasn’t until later that I realized this exhaustion was part of something much bigger…