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Share Your MDS Story
One Voice Inspires, Many Voices Transform
Lynn's Story
Patient
Bruising was the first visual sign, and next was extreme fatigue. Just not feeling my normal self. Bone marrow test revealed MDS with 5Q minus syndrome. I turned 70 in February of this 2025, and diagnosed with MDS one month later. So far, we are keeping close tabs on my hemoglobin levels. I feel it waxs and wans because I will have good days and then bad days. So far, we are not doing any medication because hemoglobin level increased from 9.2 to 10.2 somehow I don’t know. Anyway, we are not doing anything at this point. My family doctor started me on Remeron because I was having difficulty sleeping, causing me to be irritable and more fatigued. The more I’m learning the more I know that it’s rare and not much as known. I’d be interested in learning more through the foundation and with other patients.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Rebecca (Becky)'s Story
Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Laura's Story
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…
Tara's Story
Caregiver
my son his 9 and recently diagnosed mds . so far this is just the beginning
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
