Share Your MDS Story

From a young age, my parents instilled in me the importance of easing the burdens of others and leaving the world better than I found it. That early lesson shaped who I am and why I have always been driven by purpose. For me, purpose has never been found in strategy decks or reports – it’s found in the lives you touch. That is why my work has always been about people, impact, and the change we can spark together. That’s what led me to the MDS Foundation, and why blood cancer has become such a deeply meaningful cause in my life. 

As CEO of the Foundation, I am reminded every day that MDS is more than a diagnosis – it’s a life suddenly turned upside down. Patients and families face fear, uncertainty, and overwhelming complexity. To stand with them, to offer education, support, and community in the middle of that storm, is both humbling and a privilege. Knowing that our work can make even just one person feel less alone and more hopeful today is what inspires me every day. 

At the same time, I am equally committed to the long view. It is not enough to help people navigate the present – we must also simultaneously accelerate research, invest in science, and work relentlessly toward a future where patients have better treatments and, ultimately, cures. That balance of urgent support and future solutions is what makes this work so powerful and personally meaningful.  

At the MDS Foundation, we are dedicated to improving the lives of everyone affected by MDS. We connect patients, caregivers, and healthcare professionals with the knowledge, resources, and community they need to face this disease with strength, understanding, and hope. 

And so, this Blood Cancer Awareness Month, I invite you to share your story – because your story matters. One voice inspires, but many voices have the power to transform the future beyond what we ever thought possible.