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Share Your MDS Story
One Voice Inspires, Many Voices Transform
Janice's Story
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast cells of 2.9%. Also, 3 acquired mutationed genes. I was told that we would monitor my blood. I wanted to look for others that have also been diagnosed with this and hopefully learn more about MDS.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Mercedes' Story
Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…
Peggy Ann's Story
Patient Advocate
From a young age, my parents instilled in me the importance of easing the burdens of others and leaving the world better than I found it. That early lesson shaped who I am and why I have always been d…
Amanda's Story
Patient
For many years, I’ve struggled with fatigue, but I always chalked it up to being a busy mom with young children. It wasn’t until later that I realized this exhaustion was part of something much bigger…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
