Join the Conversation, Make an Impact

Your Voice

Participate in patient surveys and advisory boards to shape the future of MDS care. Your insights make a difference.

Placeholder

Survey is Active MDSF Patient & Caregiver Survey

The MDS Foundation would like to understand more about you (the MDS patient and the MDS caregiver), your health, and your educational and support needs.

Placeholder

Cancer Support Community

This global non-profit network includes 196 locations, such as CSC and Gilda's Club centers, hospital partnerships, and satellites. They offer over $50 million in free support services to patients and families. The network also conducts research on cancer patients' emotional, psychological, and financial journeys and advocates for supportive policies at all government levels.

Placeholder

Rare Patient Voice

Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.

Placeholder

Smarter. Stronger. Together.

The "Smarter. Stronger. Together." initiative by the MDS Foundation offers essential resources for patients with Myelodysplastic Syndromes (MDS). It includes key questions for patients to discuss with healthcare providers regarding diagnosis, treatment, and clinical trials. 

Read more

The MDS Foundation proudly partners with the following organizations

MDS AllianceKnow AMLALAN

Get in touch

Email

patientliaison@mds-foundation.org
hcp@mds-foundation.org

Phone within the US

1-(800)-637-0839

Outside the US only

1-(609)-298-1035

Address

The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620

Guide Star Platinum

A global non-profit advocacy organization, supporting patients, families and healthcare providers in the fields of MDS and its related diseases for over 30 years

© 2024 MDS Foundation. All rights reserved.