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14 years w/ PV & now MDS @ 54 years old

Home forums Patient Message Board 14 years w/ PV & now MDS @ 54 years old

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This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 2 months, 2 weeks ago.

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  • #36786

    Heidi
    Participant

    My husband of 23 years is going to begin weekly Interferon injections in September.
    He has managed the PV w/ Hydroxurea, Baby Asprin, & regular phlebotomys. The dosage of Hydrox has continued to increase over the years which led to the first marrow biopsy that revealed the MDS.

    Blasts – 5.3% – consistent w/ myeloid stem cell abnormality

    Myelodysplastic – level of this abnormal blood production is quite small, but there is enough to be convincing.

    $1000/month out of pocket which is painful but could be much, much more. Best case scenario the treatment will irradicate the diseases, or keep both from progressing, or he won’t be able to tolerate Pegasys, or?

    We are terrified……..

    #36799

    mdsfound
    Moderator

    Hi Heidi, There are patient assistance programs to help. Email me at patientliaison@mds-foundation.org.

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