MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

14 years w/ PV & now MDS @ 54 years old

Home forums Patient Message Board 14 years w/ PV & now MDS @ 54 years old


This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 8 months, 2 weeks ago.

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
  • #36786


    My husband of 23 years is going to begin weekly Interferon injections in September.
    He has managed the PV w/ Hydroxurea, Baby Asprin, & regular phlebotomys. The dosage of Hydrox has continued to increase over the years which led to the first marrow biopsy that revealed the MDS.

    Blasts – 5.3% – consistent w/ myeloid stem cell abnormality

    Myelodysplastic – level of this abnormal blood production is quite small, but there is enough to be convincing.

    $1000/month out of pocket which is painful but could be much, much more. Best case scenario the treatment will irradicate the diseases, or keep both from progressing, or he won’t be able to tolerate Pegasys, or?

    We are terrified……..



    Hi Heidi, There are patient assistance programs to help. Email me at

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert