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Allogenic Stem Cell Transplant

Home Demo forums Patient Message Board Allogenic Stem Cell Transplant

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #58613
    Siobhan Scully

    Hello Again,
    Just wondering does anyone know what percentage of High Risk MDS patients proceed to transplant?
    Appreciate any feed back!
    Thank you!

    Sol Posner

    Hi, I don’t know how much help this might be.
    I’m still low risk for AML and was diagnosed with MDS 2017 and am transfusion dependent for almost 2 years every 2-3 months. Currently on luspatercept every 3 weeks. I really want the opportunity to get a stem cell or bone marrow trans. But apparently I’m to low risk to get it.I came across this web page and maybe it might help answer your question.
    Wish you well

    Siobhan Scully

    Hi Sol,
    Thank you very much for the information and link to that webinar. It is hugely helpful . I really appreciate you taking the time to post your response to me.
    Wishing you the best.

    Joanne Roberts.

    I’m 71, a physician, and 12 months out from a diagnosis of HR-MDS. I’ve had a nice response to azacytidine, with Hgb running around 11.5; platelets 80-100K; and ANC 600-800. Plan is to add venetoclax when my counts start dropping. My goal is “good life” — be as vital as possible, even if it means a somewhat shorter lifespan. I had a consultation at a well-recognized bone-marrow-transplant center, and to my surprise, the transplant specialist recommended my current treatment plan, and not pursue transplant. He said a BMT would involve at least a year of poor functional status, with a high likelihood of recurrent hospitalizations, with a five-year survival of about 30%. Neither of us perceived such a trajectory to fit my values and goals of care. (There are numerous studies that show that physicians, when they are patients themselves, choose less aggressive care, as I am doing.)

    Siobhan Scully

    Hello Joanne, Thank you so much for taking the time to response to my query! It really is great to have this forum
    which gives us great access to information we would otherwise not find. Can I ask you if you have other health issues that further influenced your decision to stick with the less aggressive treatment of stem cell transplant?

Viewing 5 posts - 1 through 5 (of 5 total)

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