Kathy, I am sorry to hear that, as it appears headaches can be a side effect of azacitidine. My husband has “low risk” MDS, 5q deletion. He’s been on Vidaza / azacitidine for 22 months after Procrit failed and Revlimid produced a severe skin reaction. He has ice pick headaches, stabbing pain in and behind his eyes and forehead. Mayo neurology finds no “reason” for these, and offers only over-the-counter pain relief, avoiding NSAIDs such as aspirin; recommending Tylenol.
Along with intense fatigue, labored breathing, and constant tiredness, these headaches are so hard to endure. But, after consulting with Mayo, it appears to us – not Mayo – that azacitidine may be the cause, and Tylenol pain relief right now is the only remedy.
Please do post here if you learn more about these headaches. We wish you well with your treatment.
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