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Any MDS patient having hot flashes (NOT menopause)

Tagged: MDS & Hot Flashes

This topic has 3 replies, 4 voices, and was last updated 2 years, 7 months ago by Mary Roth.

Viewing 4 posts - 1 through 4 (of 4 total)

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September 16, 2021 at 10:12 am #54979

Ellen Weiss
Participant

77 yr old husband diagnosed with “wait & see” MDS in 2017. Over the years he has had many episodes of hot flashes. Trying to determine if any others with MDS have had a similar experience.

September 16, 2021 at 10:21 am #54980

Kathleen Till
Participant

It is quite common to have these. I would just get them from my neck up, especially after drinking a hot drink. Just like the ones that ladies get in menopause.

I am in Moffitt cancer centre at the moment undergoing a BMT waiting for my stem cell to start working.

Kathy

September 16, 2021 at 4:15 pm #54983
Kathy Lynch
Participant
YES! Mine are also head and neck. I’m 68, 3 years into my MDS journey. Mine are also head and neck. Much worse than when I went through menopause almost 15 years ago! I have taken effexior for my Chemo induced hot flashes for the past 15 years…it worked great until the past year. See GYN and Oncologist next month… this and my almost daily headaches at the TOP of my list of issues!

I’ll post what I find out then!

PS I live in a very hot summer climate. 🙁 One of my great joys is gardening…. I can only be out in the heat for 15-20 minutes…..Can’t wait for fall and winter!!!!
- This reply was modified 2 years, 7 months ago by Kathy Lynch.
September 27, 2021 at 4:25 pm #55016

Mary Roth
Participant

Interesting topic! I am female age 65 and have had hot flashes for 15 years. I thought they should be gone by now, but maybe they are now because of MDS!
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