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  • #54372
    Carol Ward

    I was diagnosed with MDS in 2016. My problem is very low platelets which run anywhere from 24 to 40. I also have severe osteoarthritis. I had the osteoarthritis before I was diagnosed with the MDS. I used to take anti inflammatory medication, Advil etc which helped a lot. Now as you know because of the MDS I can only take Tylenol which really doesn’t help. Does anyone out there have arthritis and take a medication that works and doesn’t Affect the MDS. Everything I read says it could cause bruising or not to take if you have blood disease.


    I also had arthritis before I was diagnosed with MDS. My doctor said Advil may lower the platelets and he prescribed celebroix (?). I also use Bengay extra strength on the joints to avoid taking anything orally. It seemed to help. Perhaps ask your doctor on what to take. Make sure you tell him/her all the medication that you are taking including over the counter supplements.


    I was diagnosed in June 2016. My cytopenia is neutropenia. Currently on watch and wait. Platelets are consistently in the normal range.
    In July 2019, I was diagnosed with polymyalgia rheumatica. Prescribed prednisone which brought pain under control but managing it for 20 months was brutal as you need to taper down prednisone dosage.
    Then as the poly was diminishing my rheumatologist ordered X-rays that revealed osteoarthritis in my hands and knees. Prescribed diclofenac which is a topical to be applied to the painful joints. It helps but is a topical nasid as opposed to oral.

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