Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Beginning aranesp treatment for low risk MDS

This topic has 3 replies, 3 voices, and was last updated 4 days, 5 hours ago by Scott Davey.

Viewing 4 posts - 1 through 4 (of 4 total)

Author

Posts
February 14, 2023 at 2:46 am #59263
Joe Catalano
Participant
Diagnosed one and a half years ago. Was on watch and wait. Just now started aranesp- on it for six weeks. Red blood cells, and hemoglobin have risen slightly. Still mostly tired- Has anyone recently began aranesp ? How is it working for you? Thank you.
- This topic was modified 1 month ago by Joe Catalano.
February 21, 2023 at 9:00 am #59305

Marie Yeager
Participant

Hi Joe,
My husband is also low-risk and started Aranesp 18 months ago. It took a good 4-6 months for it to really begin to work. We were very anxious looking for an immediate response with every blood test, but they warned us that it would take a while to start feeling better… and the doctor was right. Give it more time. It is very difficult to be patient when you aren’t feeling well, but it did eventually pay off! Hang in there!
Marie

March 3, 2023 at 9:07 am #59324

Joe Catalano
Participant

Thank you for your reply Maggie. It was very encouraging. And yes I will be patient. I had read for six weeks, so I was expecting that, but it’s good to know that it will eventually kick in. Once again, thank you and best of luck to you and your husband. Good health.

March 18, 2023 at 3:46 pm #59334

Scott Davey
Participant

I’m taking Aranesp, but also Granix to keep white blood cells up and Luspatercept, which does an excellent job keeping HgB numbers steady. None of these seem to affect my symptoms (shortness of breath) though.
Author

Posts