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Beginning aranesp treatment for low risk MDS

Home Demo forums Patient Message Board Beginning aranesp treatment for low risk MDS

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    Joe Catalano

    Diagnosed one and a half years ago. Was on watch and wait. Just now started aranesp- on it for six weeks. Red blood cells, and hemoglobin have risen slightly. Still mostly tired- Has anyone recently began aranesp ? How is it working for you? Thank you.

    Marie Yeager

    Hi Joe,
    My husband is also low-risk and started Aranesp 18 months ago. It took a good 4-6 months for it to really begin to work. We were very anxious looking for an immediate response with every blood test, but they warned us that it would take a while to start feeling better… and the doctor was right. Give it more time. It is very difficult to be patient when you aren’t feeling well, but it did eventually pay off! Hang in there!

    Joe Catalano

    Thank you for your reply Maggie. It was very encouraging. And yes I will be patient. I had read for six weeks, so I was expecting that, but it’s good to know that it will eventually kick in. Once again, thank you and best of luck to you and your husband. Good health.

    Scott Davey

    I’m taking Aranesp, but also Granix to keep white blood cells up and Luspatercept, which does an excellent job keeping HgB numbers steady. None of these seem to affect my symptoms (shortness of breath) though.

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