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Between a Rock and a hard place!

Tagged: Antibodies.

This topic has 2 replies, 2 voices, and was last updated 2 years, 5 months ago by Margueritte Smith-Jones.

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November 19, 2021 at 2:09 pm #56747

Margueritte Smith-Jones
Participant

I’ve had MDS/MPN/AIHA for 2 1/2 years.Hemolysis and MDS has caused my Big to steadily go down. I’m now on my 5th week of Retacrit with no results. 2 wks. ago I had 2 pints of red cells as my hbg was 6. I am NOT supposed to have transfusions because of my antibodies are killing my red cells, and just getting them can have a serious effect on my life. What am I to do? I need medication to kill these antibodies…! Marge

November 21, 2021 at 3:56 pm #56756

Kevin Dugan
Participant

I have had good results with revlimad/retuximab.

November 21, 2021 at 5:11 pm #56757

Margueritte Smith-Jones
Participant

Hi Kevin…..tried them..and others…nothing seems to work!
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Between a Rock and a hard place!

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