Bleeding

[Nancee Noble]

I have not seen anyone else post the problem of spontaneous bleeding. I am 82 yr old. was diagnosed 2 years ago with High Risk MDS. RBC 3.36 HGB 9 PLT 27. I have nose bleeds and blood blisters in my mouth. Would like to hear from anyone else.I know this disorder seems to be different from person to person. I was given 2 years. I do receive Procret injections every week. Have been told there is nothing else they can do. I have had a good life. This will be decided in God’s time.

[Kathy Stermer]

Nancy, I had one nosebleed the first week of Vidaza which quit quickly as my platelets dropped to 36. Low platelets can most certainly make you more susceptible to bleeding and everyone has a different threshold. Hopefully your care team is aware and addressing the issue. Nosebleeds and bleeding in the mouth makes you more susceptible to swallowing some of that blood which can cause nausea and even blood to eventually show up in your stool

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