MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.


Home forums Patient Message Board Bleeding


Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
  • #44369
    Nancee Noble

    I am 81 yr. Was diagnosed with MDS 20 months ago. As I said earlier I have been getting Procret injections every week. However, things are not doing as well as they were. RBC3.83 HGB 10.3 platlet 19. I have started having nose bleeds again. ONC says platlet transfusion only lasts a few days. Wanted to start me on Promacta but does not think Medicare would cover it. Any suggestions would be appreciated.


    Dear Nancee, Have you considered getting a second opinion from one of our MDS Centers of Excellence? Following is a link to our Centers of Excellence worldwide Please email if this is something that you are considering. We can arrange a preferential appointment for you.

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert