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Bleeding

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This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 3 weeks, 4 days ago.

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  • #44369

    Nancee Noble
    Participant

    I am 81 yr. Was diagnosed with MDS 20 months ago. As I said earlier I have been getting Procret injections every week. However, things are not doing as well as they were. RBC3.83 HGB 10.3 platlet 19. I have started having nose bleeds again. ONC says platlet transfusion only lasts a few days. Wanted to start me on Promacta but does not think Medicare would cover it. Any suggestions would be appreciated.

    #44452

    mdsfound
    Moderator

    Dear Nancee, Have you considered getting a second opinion from one of our MDS Centers of Excellence? Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. Please email patientliaison@mds-foundation.org if this is something that you are considering. We can arrange a preferential appointment for you.

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