blood ratios and symptoms

[Jim thomson]

I have had 7 rounds of vidaza and my blood ratios are at normal range (for now)–but my symptoms are still bad – from fatigue-breathing -foot problems and few others. So my question -will my symptoms improve at all – how long will we be on watch and wait -I get cbc test every 2 weeks.

thanks

[Jimmy Greenhut]

Hi Jim, How can you be on watch & wait while getting Vidaza? Apparently your HB was getting low? Seems odd that they say that. Maybe low risk? What verison of MDS do you have. It’s 4yrs since I found out I have RS-T. I was off watch & wait 6mos later when my EPO shots didn’t work and my HB kept sliding. I was every 6-8 wks for a transfusion then. Are you transfusion dependent? From my team MDS makes you fatigued & breathing issues too, that’s the disease. I’m low risk & tried all the drugs out there, giving them 6mos to respond. They haven’t work, now 2 pints every 10-14 days. Just started a clinical trial. My last resort. I’m hoping it’s going to work only 42% efficacy. Will see, should know in 5mos if it extends the time frame for transfusions. Big Pharma has nothing else in the pipeline. GL Jim

Jimmy

[mk thompson]

Good luck on the trial.

[Jim thomson]

with my cbc test -blood ratios were mostly in normal range, the Doctor – now has me on once a month cbc test to monitor my ratios -and no more vidaza for now…

I only wish my symptoms would improve as my blood ratios….

[Jimmy Greenhut]

Jim, that’s the disease aspect regardless of your CBC #’s. All in all, that’s great news for you. Hang in there Jim, you have to adjust some of your lifestyles. Will keep you abreast of my clinical trial.

[Author]

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