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Blood transfusion and aranesp.

This topic has 9 replies, 3 voices, and was last updated 2 years, 5 months ago by Karen LaSota.

Viewing 10 posts - 1 through 10 (of 10 total)

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November 11, 2021 at 1:34 pm #56505

Joe Catalano
Participant

I am on watch/ wait since diagnosed in June. Low blood count with dysplasia. Very tired in the mornings.Still not within the parameters to get the aranesp shot. Is it possible I would need a transfusion before aranesp . My hemoglobin is a 10 point to making it unnecessary to get the aranesp.Anyone in a similar circumstance?

November 11, 2021 at 2:20 pm #56507

Karen LaSota
Participant

Joe
10 is not too bad. Even with transfusions every 20 days, we never get over a 9.2 level. It drops daily until we hit 6.9 or 7. The shots did not help after three months.

November 11, 2021 at 8:45 pm #56509

Joe Catalano
Participant

Karen, thank you very much for letting me know that.

November 12, 2021 at 7:25 am #56513

Chandrawati Cahyani
Participant

Karen, with transfusion every 20 days, how about the iron overload. Do not you get EPO injection

November 12, 2021 at 7:31 am #56514

Chandrawati Cahyani
Participant

I was diagnosed first with PRIMARY BONE MARROW LYMPHOMA. But after 3 biopsy during 2 months period, my onlogist decide that I suffer from MDS not LYmphona. In this 2 weeks I will got another biopsy to know the MDS i suffer is low risk or high risk. In this 2 months, I got 2 transfusions of 2 and 3 packed, but then my ferritin very high. So the oncologist gave me exjade to chellat the iron. Any other of you experience MDS for years, what did you do to handle the MDS

November 12, 2021 at 10:00 am #56523

Karen LaSota
Participant

Yes, iron overload has been a problem for the past year. Used to get transfusions every week. Now get desferal (drug) infused with every blood transfusion.

November 12, 2021 at 12:36 pm #56533

Joe Catalano
Participant

Karen, Are you asking me if I get aranesp or are you telling me not to get it

November 12, 2021 at 2:37 pm #56643

Karen LaSota
Participant

Joe
Sorry I was responding to another question about iron overload. If you have a chance for aransep to work for you – I can’t think why not.
Sorry for the misunderstanding.

November 12, 2021 at 9:18 pm #56696

Chandrawati Cahyani
Participant

Karen, how long have you got transfusion every week. So EPO did not work on you

November 12, 2021 at 10:10 pm #56700

Karen LaSota
Participant

EPOs only work for about 35% of patients. So no, did not work beyond a few months.
Weekly infusions for about 8 months.
Now infusions every 20 days with an injection of Reblozyl® (luspatercept-aamt)wvwey 21 days.
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