Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

BMT Funding

This topic has 8 replies, 1 voice, and was last updated 18 years, 10 months ago by Lolam.

Viewing 9 posts - 1 through 9 (of 9 total)

Author

Posts
May 27, 2005 at 3:14 pm #6518

JulieMarie
Member

My mom is preping for a BMT no date set yet. How has everyone funded these? We don’t want to bankrupt mom, but the insurance company is refusing to pay.

May 27, 2005 at 4:31 pm #6519

Suzanne
Member

keep after that insurance compnay. appeal the dicision.I have talked to others that had trouble in the beginning but in the end the company did pay. Hospital patient advocates may help.

May 27, 2005 at 8:33 pm #6520

JulieMarie
Member

Suzanne,

we were told it was going to cost $300K and mom’s policy has a max pay out per year of $100K how would we get around this?

May 27, 2005 at 8:45 pm #6521

Terri
Member

Julie, See if your Moms insurance has a case manager that they can assign her, They maybe able to help. I know when Bob was first diagnosed my insurance company when they saw the bills start coming in more then norm due to the hospital stays etc they assigned me one. Also our insurance has something for Transplants its an added feature over and above my norm. I would try and find out as much as possible from someone at the insurance company.

May 28, 2005 at 1:33 am #6522

Suzanne
Member

You are looking for a clause or rider that covers catastrophic illnesses. I also was assigned a case manager that negotiated with my company to get some of my needs taken care of. I think you are talking a quarter of a million not counting the medical needs for the special care needed for at least a year of follow up and addressing the problems that may come up there. Most places that do transplants have patient services offices that can help with suggestions for ways to get the bills paid. If her policy actually has an iron clad annual limit like that you may need to go elsewhere. Any possibility of her qualifying for medicaid?

May 31, 2005 at 3:18 pm #6523

JulieMarie
Member

THanks for the replies. We do have a case worker with the insurance company, and a financial case worker at the hospital. I know there will be bills that we are responsible for no matter what the insurance company decides. Since my mom has been a nurse for so long, until she is off of work for a month will she qualify for ssd and well, medcare /caide is not an option right now cause she has more than $15K in the bank.

May 31, 2005 at 10:40 pm #6524

Suzanne
Member

I had to apply for SS disability . Then remain disabled for 6 months after it was granted before they started payments.

June 21, 2005 at 5:47 am #6525

mdsmom
Member

Our search for a donor was done at MD Anderson. My daughters insurance pays only after a donor is located. I asked Anderson to provide the search at no cost to us, they paused briefly and said yes. Our cost would have been $7500 and we just didn’t have it. The search took about 1 yr and recently produced two 6/6 perfect donors. We plan to use them only as a last resort. We are very happy to welcome them to our cure!

June 21, 2005 at 7:35 am #6526

Lolam
Member

The National Transplant Assistance Fund will help you with fundraising for monies that the ins. will not pay. 1-800-642-8399
http://www.transplantfund.org
They are very kind and helpful.
I am using them presently
Author

Posts