I had a bone marrow biopsy over 10 years ago because my white blood cells stay low. It came back, after being sent to a specialized lab, as “genetic mutation”. Finally, the Dr said that I was “normally abnormal” and discharged me from future appointments. I do have Hashimoto’s syndrome (thyroid). Almost 2 years ago, my Dr sent me back to the hematologist because once again, my white cells are low and have been for a long time. The hematologist wants me to come back in the fall for a yearly checkup. He had been having me come every 6 months but the last visit my white cell count was almost too high, very high for me, but I tried to explain I was just getting over an infection and I figured that was why my count was up. He seemed so happy they were up he didn’t really listen. Should I push for more testing? This is the first time I’ve ever heard of MDS. I am 61 years old. Not sure if I should just let it go or pursue further testing. Thanks.
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