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Bone marrow transplant

HomeForumsPatient Message BoardBone marrow transplant

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This topic contains 6 replies, has 2 voices, and was last updated by  Tereze Gluck 1 week ago.

Viewing 7 posts - 1 through 7 (of 7 total)
  • Author
    Posts
  • #36787

    Tereze Gluck
    Participant

    If insurance will not pay for a BMT, is it possible to pay for it oneself?

    #36788

    rar
    Participant

    It depends how deep your pockets are. My SCT with side effects was billed at about 3 million. Insurance covered everything but was paid much less.

    #36789

    Tereze Gluck
    Participant

    I am worried I will be told I am not a ‘candidate’ due to prior ovarian cancer. Since I will die without a SCT I am determined to have one and try to find a way to finance. But will the hospital perform it if I can come up with the money?

    #36790

    rar
    Participant

    yes

    #36791

    Tereze Gluck
    Participant

    Whew! Thanks. I haven’t been turned down yet, but it could come to that..

    #36848

    Tereze Gluck
    Participant

    RAR: I was just told by Mt Sinai that I’d they turn me Dow, even if I came up with the money they would not perform the procedure. They have a transplant board that evaluates the case and if they won’t do it, that’s final. So if you DOmknow of a specific center – that caused you to answer ‘yes’ to my earlier question – can you tell me what that center is?

    #36850

    Tereze Gluck
    Participant

    Today I met with transplant surgeon. I felt like Clarence Darrow Lawyer for the defense… I was advocating for myself, up against a reluctant doctor. He explained that they have a panel which decides these things, and that my case causes some concern. Now, I have advanced high-risk MDS and I will certainly die, and soon, without a transplant. I was literally fighting for my life.

    If they turn me down, I will approach other centers. But it took so much out of me, this arguing my case – truly I felt like a lawyer pleading for my clients life – the client, in this case, me. The idea that I will have to do this repeatedly is deeply disheartening. So, if anyone knows of centers that might be more amenable to a borderline candidate, I would greatly appreciate hearing from you.

    Many thanks for your help…

Viewing 7 posts - 1 through 7 (of 7 total)

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