Bone marrow transplant
- This topic has 6 replies, 2 voices, and was last updated 5 years, 9 months ago by
.
-
RAR: I was just told by Mt Sinai that I’d they turn me Dow, even if I came up with the money they would not perform the procedure. They have a transplant board that evaluates the case and if they won’t do it, that’s final. So if you DOmknow of a specific center – that caused you to answer ‘yes’ to my earlier question – can you tell me what that center is?
Today I met with transplant surgeon. I felt like Clarence Darrow Lawyer for the defense… I was advocating for myself, up against a reluctant doctor. He explained that they have a panel which decides these things, and that my case causes some concern. Now, I have advanced high-risk MDS and I will certainly die, and soon, without a transplant. I was literally fighting for my life.
If they turn me down, I will approach other centers. But it took so much out of me, this arguing my case – truly I felt like a lawyer pleading for my clients life – the client, in this case, me. The idea that I will have to do this repeatedly is deeply disheartening. So, if anyone knows of centers that might be more amenable to a borderline candidate, I would greatly appreciate hearing from you.
Many thanks for your help…
Register for an account, or login to post to our message boards. Click here.
- You must be logged in to reply to this topic.
