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Bone pain

Home forums Patient Message Board Bone pain

This topic contains 3 replies, has 4 voices, and was last updated by  mdsfound 1 week, 3 days ago.

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • #48669

    Laura Jacobs
    Participant

    My husband has MDS and is on chemo. Prior to the official diagnosis and now, he complains of bone pain. None of his doctors seem interested in it or know what can be causing the bone pain. Is this a symptom anyone else is experiencing and what to do to help the pain?

    #48673

    JAMES KAMP
    Participant

    I was a bone marrow donor to my brother in 1996. I was given a drug to make stem cells and had bad bone pain. I was diagnosed with MDS in Nov 2016 and am on Vidaza. At certain times of the month my bones ache the same way they did back in 1996. I think they are straining to make blood. When I state that fact, people laugh at me. The doctors just say to take some Tylenol (which helps).

    #48675

    Nancee Noble
    Participant

    I agree with you. No one can give me an explanation. Mine only hurt when I lay down.

    #48677

    mdsfound
    Moderator

    Bone pain is a symptom that many patients experience with MDS. This can be due to lack of oxygen to the muscles, an immune component to MDS much like arthritis.

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