MDS is a bone marrow failure disorder
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Bone pain

Home forums Patient Message Board Bone pain

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    Laura Jacobs

    My husband has MDS and is on chemo. Prior to the official diagnosis and now, he complains of bone pain. None of his doctors seem interested in it or know what can be causing the bone pain. Is this a symptom anyone else is experiencing and what to do to help the pain?


    I was a bone marrow donor to my brother in 1996. I was given a drug to make stem cells and had bad bone pain. I was diagnosed with MDS in Nov 2016 and am on Vidaza. At certain times of the month my bones ache the same way they did back in 1996. I think they are straining to make blood. When I state that fact, people laugh at me. The doctors just say to take some Tylenol (which helps).

    Nancee Noble

    I agree with you. No one can give me an explanation. Mine only hurt when I lay down.


    Bone pain is a symptom that many patients experience with MDS. This can be due to lack of oxygen to the muscles, an immune component to MDS much like arthritis.

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