Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Bone pain

This topic has 3 replies, 4 voices, and was last updated 4 years, 8 months ago by mdsfound.

Viewing 4 posts - 1 through 4 (of 4 total)

Author

Posts
August 7, 2019 at 10:30 am #48669

Laura Jacobs
Participant

My husband has MDS and is on chemo. Prior to the official diagnosis and now, he complains of bone pain. None of his doctors seem interested in it or know what can be causing the bone pain. Is this a symptom anyone else is experiencing and what to do to help the pain?

August 7, 2019 at 6:14 pm #48673

JAMES KAMP
Participant

I was a bone marrow donor to my brother in 1996. I was given a drug to make stem cells and had bad bone pain. I was diagnosed with MDS in Nov 2016 and am on Vidaza. At certain times of the month my bones ache the same way they did back in 1996. I think they are straining to make blood. When I state that fact, people laugh at me. The doctors just say to take some Tylenol (which helps).

August 7, 2019 at 10:28 pm #48675

Nancee Noble
Participant

I agree with you. No one can give me an explanation. Mine only hurt when I lay down.

August 8, 2019 at 1:47 pm #48677

mdsfound
Moderator

Bone pain is a symptom that many patients experience with MDS. This can be due to lack of oxygen to the muscles, an immune component to MDS much like arthritis.
Author

Posts