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Centers of Excellence

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This topic contains 2 replies, has 3 voices, and was last updated by  mdsfound 3 weeks, 4 days ago.

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  • #46583

    Andrea Sileo
    Participant

    My mom was recently diagnosed with MDS del 5Q. We live in Las Vegas and are looking at UCLA, CA and the Mayo Clinic, AZ for a second opinion. Both are about a 5hr drive. Can anyone provide recommendations for doctors at either of these centers?

    Thanks in advance.

    Andrea

    #46586

    Kathy Stermer
    Participant

    I personally feel the nurses that work with physicians are a valuable resource for who is the best physician to treat your mom. If you can get a number for the nurse coordinator or nurse triage department for the facility you’re considering, try that as a potential recommendation. They work with them everyday and know who is good and experienced. Good luck.

    #46600

    mdsfound
    Moderator

    Dear Andrea, Thank you for your email. I know this is a difficult situation for you and I would recommend that you take your mother to one of our Centers of Excellence in MDS for a second opinion. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. At UCLA, I would recommend Dr. Gary Schiller and at Mayo, Dr. Jeanne Palmer.

    • This reply was modified 3 weeks, 4 days ago by  mdsfound.
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