Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Centers of Excellence………..

This topic has 4 replies, 1 voice, and was last updated 19 years, 3 months ago by Barb1962.

Viewing 5 posts - 1 through 5 (of 5 total)

Author

Posts
January 9, 2005 at 5:11 pm #2985

Barb1962
Member

Good morning to all,
I came in this morning to read the boards and decided to go to the home page and look at the lists of “Centers of Excellence”. I went through the lists and BAM, there was my husband’s doc’s name on the list Louis Letendre, MD from Mayo, I feel a little better now. He has been my husbands doc since he was diagnosed with Non-hodgkins in 2001, I’m feeling a little more self-assured about our doc.

Barb

January 9, 2005 at 5:15 pm #2986

doreen
Member

Hello… I was diagnosed with mds at the Mayo in Rochester in March 2004. I have been seeing a hemotologist there (only 2 times) and have talked with the head of the bmt group about getting a bmt. I have wondered if I should see wonder if I should make an appt with Dr. Letendre but always hope that my records are also being seen by him. Sometimes its hard to know where to turn. I tried to look for a support group for mds in rochester but have not found anything. Currently I spend alot of time looking at websites and getting more and more depressed!

January 9, 2005 at 5:35 pm #2987

shirlsgirl
Member

Barb,

Yeah! That’s great news. It’s nice to know that your husbands doc is on the list! Jody

January 9, 2005 at 5:57 pm #2988

Suzanne
Member

The center of excellence where I am reviews cases regularly with the whole team that works on MDS.I have even seen a time or two when directions changed from what My doc was talking about-a result of the opinions of others I think. Also met all the other doctors when I was in for chemo because of the schedule for who did rounds.

January 11, 2005 at 3:43 pm #2989

Barb1962
Member

Doreen?
You could mention at Mayo if you could have your records looked at by Dr. Letendre at Mayo. I know they have a multitude of docs looking at different cases, but you could specify you wanted Dr. Letendre. He is a very outspoken person, doesn’t mess around.

Barb
Author

Posts