My 78 year old mom was diagnosed with MDS mid November. She completed 5 days of Dacogen and was told her blood levels were dangerous 9 days later. She was taken to the ER and admitted to the hospital. She had several transfusions; Whole blood, platelets, RBC, and her levels never improved. On the fourth night they said the only option was iVig. They sent her home the next evening with her lowest levels of the week. HGB@7.2 Platelets@4 WBC@2.4 ANC@1.9. Can anyone tell me if this is normal? She also has COPD and still smokes! They have her in palliative Care and are planning to continue transfusions after she sees her Dr. again on January 3. I don’t understand how she can survive with levels that low? They told us anyone who comes in to her home must wear a mask to avoid infections. Any advice or similar experiences would be appreciated. Her IPSS-R adds up to 5.5 which is in the high range. Her symptoms began in July/August. Thank you for any information.
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