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Dad started his Vidaza today

Home forums Patient Message Board Dad started his Vidaza today

This topic contains 22 replies, has 1 voice, and was last updated by  Carrie 14 years, 10 months ago.

Viewing 15 posts - 1 through 15 (of 23 total)
  • Author
    Posts
  • #2600

    Carrie
    Member

    7 days straight and then a few weeks off.

    Talked to him on Thursday and he’s in good spirits smile .

    #2601

    shirlsgirl
    Member

    Glad your dad is in good spirits!! Good luck with the Vidaza. Jody

    #2602

    Suzanne
    Member

    Carrie, wishing your Dad success with the vidaza. I do believe “good spirits” are beneficial. We are pulling for him! Suzanne

    #2603

    Kathy G
    Member

    Carrie-
    My Dad started Vidaza today too. I am so praying this will be a success for him. His counts are dropping – his platelets are low and it has him so worried. We’ll have to stay in touch and see how they do. This is such an emotional rollercoaster.

    Kathy

    #2604

    KATHY1
    Member

    Carrie and Kathy,

    Hoping to hear good news from you both about your dads. Keep us informed. Good luck.

    Kathy

    #2605

    Kathy G
    Member

    Carrie-
    How is your Dad doing? Mine seems to be tolerating it OK but it’s only been 2 doses. Hope he is doing well.

    Kathy

    #2606

    Terri
    Member

    Carrie, My husband is on his second go around with the Vidaza, completed 6 months last April and it got his Blast down in the Marrow to Normal. His counts were pretty stable for 7 months. His Whites started rising and so did the blast. Doc did a BMB and started him back on the Vidaza, So far its been ok. Bobs counts are holding.
    One suggestion to all I would talk to your Doctor or a Nutritionist about Vitamins to Boost the Immune system during the treatment. OUr Hemotologist also has Bob on Levaquin an antibiotic.

    #2607

    Carrie
    Member

    I know my dad’s taking supplements but I’m not sure where from or what kind. I think he’s eating better, too. He’s never been very good at taking care of himself so he has to learn to. He’s up to over 300 lbs and he’s struggled with weight for a long time frown .

    He’s taking the Vidaza well except for a small reaction at the site. They’re keeping an eye on it but they think that they injected it in the muscle instead of the vein. They may change where they inject it. The last time I talked to my mother was Tuesday and I figure no new is good news so far.

    How long does it take after the last dose for the counts to intially go down? I know that’s where he has to be very vigilant.

    Thanks!
    Carrie

    #2608

    eve
    Member

    carrie

    the vidaza is injected into the muscle not the vein

    eve

    #2609

    Carrie
    Member

    eve,

    Okay, now I’m confused and my mom must be, too. I’ll call her today for clarification…

    Thanks for the info!

    Carrie

    #2610

    geebeebee
    Member

    Carrie and Kathy,

    Best of wishes and luck with the Vidaza for your Dads.

    Greg

    #2611

    Terri
    Member

    Actually the injections are what they call SUBQ, just below the skin not in to the muscle or vein.

    #2612

    eve
    Member

    terri is absolutely correct – definitely not into the vein

    eve

    #2613

    Carrie
    Member

    SubQ sounds more like what my mom meant. I think I filled in the blanks with what I thought I heard. So I guess they have to make sure they don’t put it into his muscle again but definitely not into his vein.

    That explains why they don’t use his port for the injection.

    #2614

    Kathy G
    Member

    Thanks Greg – so far he is doing OK with Vidaza -I keep holding me breath. He’s got a bit of a cold so I’ve been worried it might get worse but he’s hanging in there.

    Thanks for all the positive thoughts.

    Kathy

Viewing 15 posts - 1 through 15 (of 23 total)

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