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Did anyone get better after diagnosis?

Home forums Patient Message Board Did anyone get better after diagnosis?

Viewing 7 posts - 16 through 22 (of 22 total)
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  • #49401
    Diane Lafontaine
    Participant

    mk thompson, I’m in Canada so I don’t know how your medical system works. I take CBD oil which is legal in Canada and I have been told that I am in remission. all my numbers are almost all back to the normal range. maybe someone else can help you that is in the US

    #49411
    Kathy Lynch
    Participant

    Hi Garth, I live in California so I can get just about any dose over the counter. I have used CBD oil off and on for the last 2 years, nothing consistent.
    I am interested in the strength and how often.
    I was diagnosed a year and a half ago.
    My numbers have come up in the past week after 5 Aranesp shots which I started 2 1/2 months ago…w/c and neutrophil finally in the normal range for the fist time in over a year…my HGB is finally 10.4. My r/c count has not changed in over a year 2.79…
    I too am very achy which the docs tell me is normal ;(
    Want to start taking CBD oil on a daily basis, thanks for any help on dosage.

    #49417
    Kathy Stermer
    Participant

    Kathy, I can only give you my experience with CBD. I use 1,000mg bottle and take 1-2 droppers when I need it. It’s very arbitrary based on your response as it helps many and some not at all. Being in Cali you should have many choices available to you.

    #49418
    Gareth Hare
    Participant

    Hi Kathy. I used the highest strength available here: (100 mg/ml) and took 1ml twice a day. My doctor thought if it was going to work in treating the cause then I might as well take a high dose. Bloods have not improved so I have stopped but I certainly felt I had more energy…then that might be the 8 hr eating/ 16 hour fasting regime I have been on….will see. Interested to know about Aransep as several people have mentioned that.

    #49560
    Gladys Mize
    Participant

    I have been on 60,000 units of Procrit once a week for several years now. My HGB numbers haven’t gone above 9.0. Lately HGB is 6.1-8.1. I’m having to have a transfusion once a month. It seems I only need them July/August to December and then I’m good. My doctor is saying the Procrit is no longer working & wanting to try other options (chemo). I’ve tried DoTerra DDR that worked for a while & a blood booster I found on Amazon but I’m running out of options. I had thought of using CBD oil but wasn’t sure if it would help so I’m glad to see it has for some folks. I’m planning to see a holistic doctor in January for other options. My HGB is 6.1 today & I am really struggling with energy levels, it’s an effort to walk to the bathroom. thanks for sharing your stories. I wish you all the best, feel better.

    #49853
    Tracy Jakusz
    Participant

    Hi There! I am “unofficially” diagnosed with MDS (macrocytic anemia with blasts but no chromosomal abnormalities and platelets and WBCs are normal). Looking into holistic options and saw your posts on CBD oil. Can I ask is this with or without THC? I’m in Illinois where it’s just now legalized, but still work full time, so need to be able to function. Do you take it at night so you can be alert during the day? I’m pretty ignorant on the uses and how to take it. Also, I see CBD oil everywhere; even Walmart….. how do you know what is good quality and what is not?

    Appreciate any and all help and suggestions!
    Thanks,
    Tracy

    #49857
    Diane Lafontaine
    Participant

    Tracy Jakusz, I take CBD oil in liquid form. it has no THC in it so you certainly can take it at any time. I take it at night. Try to find out where to buy the best quality in your area.

Viewing 7 posts - 16 through 22 (of 22 total)

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