Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Drugs to teat MDS

Tagged: Drugs

This topic has 4 replies, 4 voices, and was last updated 2 years, 4 months ago by Joe Catalano.

Viewing 5 posts - 1 through 5 (of 5 total)

Author

Posts
November 8, 2021 at 4:14 pm #56458

cerbysam
Participant

I am low risk but want to make sure I find a part D drug company that will cover the medications I might need. Could someone give me a small list of drugs that are used to treat in the early stages

November 12, 2021 at 4:40 pm #56693

Karen LaSota
Participant

from my friend, google:
Azacitidine (Vidaza®) · Decitabine (Dacogen®) · Lenalidomide (Revlimid®) · Luspatercept-aamt (REBLOZYL®) · INQOVI® (previously known as ASTX727).

November 12, 2021 at 9:02 pm #56695

Amy S.
Participant

I believe if the drug is delivered via IV or injection, it is considered as part of the chemo treatment and is covered by Part B and not by the Part D drug plan. FOr example, in my case, I got Azacitidine (Vidaza®) via IV infusion, so my part B covered it and I never use my part D. I do not know about the oral Vidaza (e.g. INQOVI). To be sure, I suggest asking the doctor what drugs or treatment method he/she plans to use.

November 14, 2021 at 4:27 pm #56719

cerbysam
Participant

Thanks for all of your help. I was afraid that I had to buy a really really part D coverage but now it looks like Medicare will help with this. Hope I never have to use it. Fortunately I have been stable since diagnosed in 2014. Thanks again for your help.

November 24, 2021 at 9:19 am #56774

Joe Catalano
Participant

Since I joined the message board I find it helpful to hear it was going on with others. I am a bit surprised to find people asking what treatments they may try. I am on watch and wait I have a doctor at Sloan Kettering and I trust that he will guide me along the way. Do others not feel that way or am I being naïve
Author

Posts