MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • #50235
    Dawn Scott
    Participant

    Hi My Father is 88 and been having transfusions for 3 years. It was every 4 week then 3 then 2 weekly. He needed 3 bags last week. Then came back home and said he wont be having nay more transfusions. we think his specialist has said this as it came out of the blue. His levels were only 53 this time though. he is being checked today to see waht his levels are. he is still saying he wont go for another transfusion. We have no one to help. My husband has heart problems and I ahve varoius complaints so cannot lift etc. he can hardly eat and is very weak can hardly walk. Always refused any help. He wont have a carer-or wouldnt up to now. we have to do all his cleaning etc.just wondering what to expect as obviously he is only going to get weaker. His GP has agreed he can stay at hoem he wont go any where else, or to hospital or a care home. Can you request hospice at home or does his GP have to ask them? The district nurses are short staffed here. Any advice welcome, Thanks.
    NIgela

    #50262
    Mer Stpierre
    Participant

    Hello Dawn, I don’t know where you are located but here in Fl, you can contact hospice and they will contact the doctor for confirmation. If he is not taking any treatments they will come in. It sounds like you have a lot on your shoulders, I hope you can find some assistance.
    Mer

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