MDS is a bone marrow failure disorder
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End stage MDS

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  • #49915
    Dianne Massey
    Participant

    My dad is 90. Diagnosed 3 yrs ago. Does not produce red blood cells. Is home with hospice with the MDS and aspiration pneumonia for the last 4 months. Was previously being treated with aranesp, but no treatments since august. Now has unexplained high fever. Not pneumonia this time. Can MDS cause fever at the end?

    #49921
    Lori Ness
    Participant

    My 88 year old mother in law just past on December 18, 2019 of MDS. She didn’t have a fever but was always being checked for one. The doctor said everyone is different so they were always monitoring her. At the end however, she did go from usually be cold to being hot. We were told, as the body declines, the temperature regulator in their bodies stops working. Things did start moving quickly once she stopped her transfusions and went on hospice. She passed away at home, peacefully, without pain and with dignity. Our hospice nurses and her doctor were absolutely wonderful helping her and us make a painless transition. Thinking of you at this time with your dad.

    #49922
    Susan Paolilli
    Participant

    If there is a low neutrophil count then the nobody can’t deal with inflammation or infection.

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