MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

exjade and white cells

Home Demo forums Patient Message Board exjade and white cells

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
  • #16999

    We were able to make confirmation today that Exjade did in fact interact with mom’s neupogen and keep it from working. After stopping the Exjade and waiting, then retesting mom had neuts today. We’ve been working on testing this out in several ways over the past few weeks.

    So the warning is – if you are on either an EPO or a GCSF (procrit, aranesp, neupogen, neulasta) there is the liklihood that the Exjade will render those drugs useless thereby lowering counts. Keep an eye on your reds and whites if you’re taking Exjade. For now, mom is off of it and we are considering desferal via her picc line 3x’s a week or we may just forget it and do nothing at this point. We’ll make that decision next tuesday.

    If you have already noticed this issue with Exjade and any of the above drugs please contact Novartis and tell them. I posted a number earlier and now I can’t find the post???? Looks like it might have been deleted??? Our doctor has also been talking to Novartis about this. It’s very important that they know what’s going on since this drug was not tested for leukemia/MDS patients as well as not being tested on anyone over 65.



    patti, The # for Novartis is 1-800-882-6577.

Viewing 2 posts - 1 through 2 (of 2 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert