exjade side effect

[patti]

I know there are a number of people taking exjade here and I just thought I’d mention that mom started having a reaction last night after taking it for two weeks. She has a rash all over her body right now. It’s not hives but is obviously, not petichaie either. She’s only on 250mg so I’m surprised at the reaction. It makes me VERY thankful we didn’t start at the full dose!! Does anyone know if exjade builds up to a certain level in the body or if it’s metabolizes out of the system every 24hrs?

The reading I’ve done says they can restart exjade after the rash is gone but at a lower dose and with a steroid. Well, not sure she can go a lower dose then 250 and I’m pretty sure we don’t want steroids so we might be in a pickle here. We see the doctor tomorrow. For now she’s stopping the exjade until we see the doc.

Just wanted to throw this out there for others who are on exjade and ask if you’ve had the rash.

Patti

[marlene]

Hi Pattie,

John did not experience the rash. I too read where you can stop it, let it clear up, then start the Exjade again. I think you can go as low as 125mg. But my understanding is that once the rash resolves, it most likely will not come back. The average elimination half-life is 6 -18 hours. So after two days, I would guess she should be clear of it.

I don’t know how long it take the rash to resolve though.

Marlene

[Author]

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