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Exjade vs Jadenu

Home forums Patient Message Board Exjade vs Jadenu

This topic contains 2 replies, has 2 voices, and was last updated by  Margaret Bederaux-Cayne 1 week, 3 days ago.

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  • #49367

    Hi, Just got a call that they are looking at starting my husband on Jadenu, instead of Exjade – any comments on the use of either or both of these are welcomed. ASAP please – need info to confirm using the Jadenu

    #49368

    Kathy Stermer
    Participant

    My physician tells me they are the same thing. I am currently taking the generic of exjade and have been tolerating it ok. My ferritin has gone from 1600+ down to 1000 in 3 weeks. Tastes terrible and only way to thoroughly dissolve is in a small bit of hot water and then add cold mixer and slug down. I use coconut water with mine. I am also very conscious of drinking lots of fluids (90oz) following as it gets filtered through kidneys. As I’ve not had any nausea issues thus far have been taking first thing in am as needs to be on an empty stomach. Good luck

    #49384

    Thanks for the input Kathy. It will take a few weeks to get confirmation from our insurance plan & the other patient plan that covers the balance. Thankful we get help to pay for this. My Hubby is still taking high doses of Curcumin, hoping to reduce the ferritin levels before he starts the Jadenu. It went from 1998 – 1766 when he first started the curcumin, but the last test was 1977. He gets it tested again on November 15th. Hopeful it will be down. He does have blood transfusions , 2 units, every 2 weeks.

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