Hello, I am new in this board, and I want to know about feeling tired and fatigued in MDS patients.
I have been diagnosed with MDS/MPN RS T .My hemoglobin is still in 9.9 and platelets are high. I have told my oncologists, one in Puerto Rico where I live and the other in a US Cancer Center, and also my internist physician, and the three of them have told me that I should not be feeling tired and fatigued with a 9.9 hemoglobin. The three are suggesting to look for other reasons for my tiredness… and have recommended many studies but all of them have good results.
I am a big boned frame person, 72, 5,10” height. And Zi insist my body needs more energy.
What do you suggest? Any information to read?
Thanks, please help.
Haydee