MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Getting AML treatment starting Monday

Home Demo forums Patient Message Board Getting AML treatment starting Monday

Viewing 15 posts - 1 through 15 (of 16 total)
  • Author
  • #4748

    I didn’t get admitted to the hospital today. However, I will be
    admitted to Johns Hopkins on Monday and will be there for a MONTH.

    The appt. went well. My dr. (Stephen Gore) is very optimistic. Apparently this type
    of leukemia (T8-21) is the easiest to treat and has a 90% chance for a
    full remission after my first rounds of chemo.

    On Monday, I will have more blood work done, have a platelet infusion,
    then have a Hickman catheter (sort of like a porta catheter, but it’s
    on the outside of the skin near my collarbone-area, not inside the
    skin). Then Monday afternoon I will start chemo for 3 days, 24 hours
    a day. Then I am off of chemo for 4 days and then go back on for 3
    more days with a different chemo drug. Then, I am in the hospital for
    another 3 weeks to be closely monitored for fever, infection, etc. I
    will lose my hair at the 3 week mark.

    Then I go home for a month to let my blood counts come up. I then go
    back in the hospital for another month to do the whole
    chemo/monitoring thing again.

    I am allowed to have visitors, including kids. I will have to meet
    you in the visitors lounge or the cafeteria. No one is allowed on the
    chemo floor except patients and medical staff.

    That’s about it for now. I am going to be very busy this weekend
    packing, cleaning, grocery shopping and spending quality time with my
    husband and daughter.

    Thanks for all your support and responses. They do more for my
    spirit than you can imagine.



    Jennifer, will keep you in our prayers. You hang in there!


    Jennifer, I am very happy to read about the good prognosis. A lot more good wishes going your way. Kate


    Jennifer wishing you the Best, Hope all goes well and Will wait for your return so you can tell us yu are in Remission.


    wishing you well



    Wow Jennifer you have quite the regigm set up for chemo. Makes me wonder if they didnt do enough for me when I went into AML. Mine was just 7 days and then out. Are you in AML? You gave it a name T8-21. I am totally unfamiliar with that. Do you think mine has a “type” or can there just be AML.?
    I hope that this chemo set up will do the trick for you. You have been though so much already. What part of the breast cancer treatment is responsible for putting you into MDS/AML? Is it the chemo or radiation??


    My guess is thaat the type designates where her AML came from. I have not heard that designation # either. I did find a list of 8 types of AML and as I mentioned before my Dr said they only apply to people who just have AML not when it was a progression from MDS. Pam I think the amount of chemo you had might have been different because you are expecting do a bone marrow Transplant. treatments seem to be different depending on your, diseasase, Physical condition and also somewhat between different doctors or institutions

    andrzej g.

    Suzanne – 8 types of AML you mentioned referred to the FAB classification regarding only morphology of the neoplastic clone. The newer WHO classification listed below is based not only on morphology of the cells but also on clinical, immunophentopic and cytogenetic features. T(8;21) means translocation – part of chromosome 8 is translocated to chromosome 21 and this particular aberration is connected with relatively good prognosis in that subtype of AML.

    WHO Classification:
    AML with recurrent genetic abnormalities
    AML with t(8;21)(q22;q22); (AML1/ETO)
    AML with abnormal bone marrow eosinophils inv(16)(p13q22) or t(16;16)(p13;q22); ( CBFß/MYH11)
    Acute promyelocytic leukemia (AML with t(15;17)(q22;q12) ( PML/RAR-a) and variants
    AML with 11q23 (mixed lineage leukemia) abnormalities
    AML with multilineage dysplasia
    After a myelodysplastic syndrome or myelodysplastic syndrome/myeloproliferative disorder
    Without antecedent myelodysplastic syndrome
    AML and myelodysplastic syndromes, therapy-related
    Alkylating agent–related
    Topoisomerase type II inhibitor–related (some may be lymphoid)
    Other types
    AML not otherwise categorized
    AML minimally differentiated
    AML without maturation
    AML with maturation
    Acute myelomonocytic leukemia
    Acute monoblastic and monocytic leukemia
    Acute erythroid leukemia
    Acute megakaryoblastic leukemia
    Acute basophilic leukemia
    Acute panmyelosis with myelofibrosis
    Myeloid sarcoma
    Acute leukemia of ambiguous lineage


    Best of wishes, Jennifer. Keep us posted when you can.



    HI JEn, your routine sounds pretty Strenuous.I know you need to take care of your family but YOU also need your rest.We will be thinking of you and praying for a full remission. Ellie


    Andrzej.Thank you for your explanation of the varios categories of AML, it’s mind bolgling to me as a lay person, but it gives us a basis to reseach our own category.It’s very helpful to have your input.Best wishes for your father. Ellie


    Glad somone else found it “mind boggling”. No wonder there are so many different reactions to drugs etc. Half of these I have never seen mentioned but it does make what my Dr told me make sense- that AML progressing from MDS is a classification of its own.Probably means we need to be careful comparing treatments and reactions. Thanks Andrzej. Do you have a medical background?


    I looked at your profile and found that you are a Dr. No wonder you have access to all this information and explain it so well. It is good to have you as a member of the forum.!


    Sending positive thoughts your way Jennifer!.

    Great news!, you will beat this and be able to get on with life!

    I’ll be thinking of you,



    Good luck! WE’ll be praying for you! Keep us updated when possible.

Viewing 15 posts - 1 through 15 (of 16 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert