H. con. Res. 179-Copy for Your Use

[SandyB]

Here is a copy of the H. Con. Res 179. Hopefully we can all pass it around to all of email lists and ask for assistance in people contacting their Federal Congressional Reps.

We should all try to get the attention with groups like AARP to help us in spreading the word and education people on MDS.

You may view this directly at: http://www.govtrack.us/congress/billtext.xpd?bill=hc109-179

109th Congress
H. Con. Res. 179: Expressing the sense of the Congress regarding bone marrow failure diseases
Introduced: Jun 16, 2005
Sponsor: Rep. Sherrod Brown [D-OH]
Status: Introduced (By Rep. Sherrod Brown [D-OH])

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IV

109TH CONGRESS
H. CON. RES. 179
1ST SESSION

Expressing the sense of the Congress regarding bone marrow failure diseases.

IN THE HOUSE OF REPRESENTATIVES
JUNE 16, 2005
Mr. BROWN of Ohio (for himself and Mr. BILIRAKIS) submitted the following
concurrent resolution; which was referred to the Committee on Energy
and Commerce

CONCURRENT RESOLUTION
Expressing the sense of the Congress regarding bone marrow
failure diseases.

Whereas every year approximately 20,000 to 30,000 Americans are diagnosed with aplastic anemia, myelodysplastic syndromes (MDS), or paroxysmal nocturnal hemoglobinuria (PNH);

Whereas bone marrow failure diseases can strike any person anywhere in the world, regardless of age, gender, race, or ethnicity;

Whereas the highest incidence of these diseases occurs with people age 60 or older;

Whereas the number of cases of these diseases will increase each year as the American population continues to age;

Whereas bone marrow failure diseases occur when the bone marrow stops making enough healthy blood cells or produces poorly functioning blood cells;

Whereas the causes of aplastic anemia, MDS, and PNH remain unknown, but are linked to toxins and viruses that commonly occur in our society and both prescription and over-the-counter medications;

Whereas patients diagnosed with these diseases also suffer from anemia, bleeding, infections, and thrombosis;

Whereas most treatments for bone marrow failure diseases are experimental, and there is no single cure for these diseases;

Whereas the Aplastic Anemia & MDS International Foundation is the Nation’s oldest and largest patient advocacy and support network for individuals suffering from bone marrow diseases; and

Whereas the Congress as an institution and Members of Congress as individuals are in unique positions to help raise public awareness about bone marrow failure diseases and to support the fight against these diseases: Now, therefore, be it

1 Resolved by the House of Representatives (the Senate
2 concurring), That it is the sense of the Congress that–
3(1) all Americans should gain a better under-
4 standing of bone marrow failure diseases and their
5symptoms;
6(2) all individuals diagnosed with bone marrow
7failure diseases and their families should have access
8to a variety of treatment and counseling options;

HCON 179 IH

(3) families coping with bone marrow failure
diseases should be linked to support networks and counseling and information services provided by non-profit organizations like the Aplastic Anemia & MDS International Foundation; and

(4) the Federal Government should–
7 A) endeavor to raise awareness about the
8 importance of the early detection of, and proper
9 treatment for, bone marrow failure diseases;
10 (B) provide adequate funding for research
11 into the causes of, and improved treatment for,bone marrow failure diseases;
13 (C) engage in such public health initiatives
14 as surveillance, education, and awareness of
15 bone marrow failure diseases; and
16 (D) continue to consider ways to improve
17 access to, and the quality of, health care services for detecting and treating bone marrow
19 failure diseases.

HCON 179 IH

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