MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Has anyone seen Dr Alan List @ Moffitt Cancer Center

Home forums Patient Message Board Has anyone seen Dr Alan List @ Moffitt Cancer Center

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
  • #49072
    Jimmy Greenhut

    Hi, was wondering your experience with him. My Hemo referred me to him. I have MDS/MPN RS-T.
    Thank you


    Dr. Alan List at Moffitt Cancer Center, an MDS Center of Excellence, is world renowned in the field of MDS.

    Marge Begley

    I have been seeing Dr. List at Moffitt for 4 1/2 years. He is an excellent physician and developed Revlimid a go to medicine if Procrit fails. Unfortunately, he has left Moffitt. I am currently searching for a new MDS specialist at Moffitt for my annual appointments.

    Jimmy Greenhut

    Sad day Marge, I saw him in early Dec. I asked about Luspatercept, which he thought would be approved. I was there yesterday and met Dr Komrokji who is also versed in this field, currently taking part of his patient load. Knowledgeable & trustworthy, first impression. Will continue to seeing him. Brought up Luspatercept again because the procrit isn’t working for me. Great news!! End of April I was told. Ins will cover it too. Good luck Marge, things are looking positive for a change 🙂

    Nicola Beisel

    Hi- My husband is seeing Dr. Sallman at Moffitt. He is the lead researcher on a study of a drug (246?) targeting the TP53 mutation, which my husband has. We like Sallman, and trust him.

Viewing 5 posts - 1 through 5 (of 5 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert