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Heart pounding

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Viewing 8 posts - 1 through 8 (of 8 total)
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  • #53015
    Mary Piel
    Participant

    I was diagnosed with low risk MDS in the Fall 2019. Counts are pretty steady with Hgb 9, plts 60, wbc 1.3. I feel fatigued and will be started on Epo. But what is driving me crazy is that I feel and hear my heart beat almost constantly. I am guessing this is due to anemia. Anyone else have this condition?

    #53081
    Kathy Stermer
    Participant

    I get this frequently when my hgb gets low and is a sign from my body I’m reaching a point of needing blood. After living with this for a few years, my body has adapted to being low and gets more pronounced when my hgb gets in the low 7’s. The “whooshing” sound used to drive me crazy and was a constant reminder to me that I had this nasty disease but now is most pronounced at the end of the day when I’m fatigued.

    #53099
    Mary Piel
    Participant

    Thank you so much, Kathy, this makes me feel better. I am still in the beginning of coming to grips with this condition. It all makes me anxious.

    #53100
    Kathy Stermer
    Participant

    Mary, I would be happy to speak with you anytime as a fellow patient.
    If interested email me
    ksterme58@hotmail.com and I’ll give you my phone #

    #53102
    Belinda Chadwell
    Participant

    Mary, every time I have low Hemoglobin, hematocrit and red blood cells my heart will pound so loud that I have a hard time hearing anything else.
    I’m usually very fatigued and short of breath at that point as well. I know by all those symptoms that it’s time for a blood transfusion. I’ll go to office for labs and end up going to hospital for two units of blood.
    So please let your doctor know of your symptoms. I too, will answer any of your questions, if I know the answers.
    Belinda

    #53103
    Mary Piel
    Participant

    Dear Belinda, Thank you so much. I cannot tell you how much that helps me. I feel lik e I am waiting for my heart to stop. My Epo was approved and I go in on Monday for my first shot. I am keeping my fingers crossed that it will help. I hope you are feeling well today, Mary

    #53104
    Belinda Chadwell
    Participant

    Mary, you are most welcome.
    I’ve been dealing with diagnosis since July 2019. They gave me 1 yr 6 months to live. I’m still fighting. I take Vidaza for 7 days every 4 weeks and Aranesp injection every 3 weeks. In between, I’m getting labs, see the doctor, then right before it’s time for Vidaza again, I end up getting 2 units of blood. Then it starts all over again. I’m hoping, and by the Grace of God, I’m here longer than a year and half. Already past a year, so we will see.

    #53109
    Mary Piel
    Participant

    Belinda, i am so sorry. I am assuming you are ” high risk”. I was diagnosed last Fall. Why dont they give you a bone marrow transplant?

Viewing 8 posts - 1 through 8 (of 8 total)

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